How to buy the book

Hi,

Just a brief reminder to let you know how you can buy the book.

You can now buy it for £9.99 via the link below:

The book can also be downloaded for £5.99

http://www.lulu.com/content/paperback-book/memories-never-die/7772583

To order a postal copy of Memories Never Die by Del Deanus please send a cheque made payable to Emma Luscombe for £12.99 (price includes postage and packaging) to 22 Lockleys Drive, Welwyn, Hertfordshire, AL6 9LU. All profits from the sale of this book will go to the Motor Neurone Disease Association. Please allow ten working days for delivery.

Any questions please email dandjpublications@live.co.uk

cheers

Del

Re-united with Ryan Giggs and the book is now avai

Hi all,

As ever thanks for the kind messages and supporting this blog.

On Monday we visited Manchester United's training ground to meet up with Ryan Giggs and Nicky Barmby who kindly agreed to help publicise the book.

You can now buy the book via the link below:

The book can also be downloaded for £5.99

http://www.lulu.com/content/paperback-book/memories-never-die/7772583

It was fantastic to meet up with Ryan and Nicky and my England schoolboy manager Dave Bushall who kindly gave us a tour of the amazing training facilities United have. I hope the photos we took will prove really helpful in promoting the book and raising awareness of MND.

I was interviewed for MUTV along with Ryan and Nicky and we will be uploading the video link within the next 24 hours.

A huge thanks must go to Richard and John Morton for organising the day. It's one I'll never forget and Ryan and Nicky are real credits to their profession.

Aside from ordering the book on the net you can order it by post: Here's how -

To order a copy of Memories Never Die by Del Deanus please send a cheque made payable to Emma Luscombe for £12.99 (price includes postage and packaging) to 22 Lockleys Drive, Welwyn, Hertfordshire, AL6 9LU. All profits from the sale of this book will go to the Motor Neurone Disease Association. Please allow ten working days for delivery.

As always thanks for reading and make the most of now.

cheers

Del

How to buy the book

Hi all,

Thanks for stopping by and having a look at the latest update. Also I'd like to say thanks for all the kind messages we recieved about our baby news.

We had a launch dinner on Saturday (October 24) for the limited edition of the book. We sold all 22 copies which were available and have taken orders for 100 more. We only ordered a limited number this time because we wanted people to give us feedback and help us with the proof reading process.

The evening went really well and both Emma and I had a great time and those that have have already read the book are very positive about it.

We will now be launching the finished version of the book on November 16.

Right a lot of people have been asking me how they can go about getting a copy of the book. Here goes.

Pre-order postal: To pre-order a copy of Memories Never Die by Del Deanus please send a cheque made payable to Emma Luscombe for £12.99 include postage and packaging to 22 Lockleys Drive, Welwyn, Hertfordshire, AL6 9LU. All profits from the sale of this book will go to the Motor Neurone Disease Association. Please allow ten working days for delivery.

Download: From Monday November 16, you will be able to download a PDF version of Memories Never Die for £4.99 from a website, further details to be announced early in November.

Via the internet: From Monday November 16, you will be able to buy a copy of Memories Never Die priced at £9.99 + P &P via a website, further details to be announced early in November.

Any questions email me at the address below

Thanks,

Del

PS Remember you can message Del directly at dandjpublications@live.co.uk

The best news of all.

A message from Del

Hi All,

As always I’d like to thank you for your support of this group and my blog. I’ve been lucky to have received so many messages of love and support. They really keep me going, especially as I’m unable to work at the moment and I’m waiting for the results of an assessment to see if I can carry on working.

It’s been a while since we updated the blog and lots of things have happened, so here goes.

We are having a limited edition book launch on Saturday evening (24th). It’s a small mainly family affair in Welywn where we will have dinner and sell the first 20 copies of the book. We’ve had a few teething problems getting them produced but we seem to be almost there.

We will be launching Memories Never Die to the wider world on Monday November 16th. There’s a possibility it will be made available before then by downloading it. I like the idea of downloading it because it will help people who have the same mobility problems I’m experiencing. I now find it impossible to turn the pages of a book so scrolling down on a PC screen is a lot easier.

We are also going to make the book available in a spiral bound format. A draft of the book was printed and bound in this way and I found it easier to turn the pages.

I’ve saved the best bit of news to last. It’s something we have kept a lid on for a good few months now. Emma is pregnant and we are expecting our first child on December 24. A wonderful Christmas present and we are both incredibly excited.

The news about baby Deanus gives the book an added importance. We have included a chapter in it where I write a letter to my child sharing some of my thoughts on life and my hopes and dreams for their future. It was a difficult but essential part of the book to work on. It’s the only time I’ve noticed Jerry go quiet through our eight months of working on Memories Never Die.

If you would like to join us for a few drinks after the dinner we will be in The White Horse in Welwyn from 9pm on Saturday.

Thanks,

Del.

Message from Jerry

Hi,

You can now send your messages of support directly to Del via dandjpublications@live.co.uk

Cheers

Jerry

Nearly There

Hello again,

As always thanks for your continued support I really appreciate it and it gives me strength to keep battling.

Well things are really falling into place with the book. We have made major progress this week. We have received the first versions of our proofing copies, are close to booking of a venue for the launch event and have a new name for the book.

As much as I liked the title Making the Most of Now I wasn’t 100 per cent sure of it. So I’ve decided on a new name for it……………MND – Memories Never Die.

There’s a brief explanation in the book about why I liked this title so much. We are also currently putting photos into the book and will be ordering a final proofing copy on Monday October 5.

Jerry’s just come off the phone from getting a foreword from Nicky Barmby. Nicky and I were great mates during my Tottenham Hotspur apprentice years. He’s a lovely bloke and what an amazing career he has had.

Also we can confirm the book will be on sale from October 26th and should be available on Amazon, Lulu Publishing and through mail order.

I’m excited and looking forward to seeing the final version of something that’s taken seven months of hard work to put together. I really hope people enjoy it, are possibly inspired by it and having read it understand a bit more about MND.

Thanks for reading,

Del

Living with MND

Hi everyone,



Thanks again for the ongoing support.

Below is an extract from a section of the book where I talk about the reality of living with Motor Neurone Disease.

I've tried to be as honest and open as possible.

Jerry and Tamsin are doing well on the proof reading and formatting side of the book and will have our first full checked version by next Monday.

Once that's done we will send it to the printers for a final proof copy and then place an order which will mean the book will be available to buy from October 23 (ish).

All profits will go towards Motor Neurone Disease Association.

The photo is me when I was bout 7-8.


Thanks again,

Del





April 24 2009

"It takes me 15 minutes to get out of bed. My mind is awake a long time before my body kicks into its limited gear. It’s incredible how much we take for granted in our daily lives.

You never know what you’ve lost till it has gone. In my situation that’s so damn true. How I would love to be able to simply splash cold water on my face on a hot day. I’d give anything to just feel comfortable popping round to the shops for a paper and then stop off for a pint. I’ve forgotten the last time I was able to finish a plate of food without Emma or someone else helping me.

I’m now eating a lot more bread simply because my hands can just about clumsily grip a sandwich. To tell the truth I absolutely hate being so dependent on others. If I come home from work and am thirsty I can’t just go to the fridge and grab a bottle of water, my hands and arms just won’t allow it. My drinks now have to come with the added extra of a straw.

How I’d love to be able to cook for Emma again. I used to love cooking, I found it relaxing and it was always guaranteed to take my mind off work, football or my debts.

At the moment I’ve lost a lot of confidence of being outside because of the difficulty I have in walking. I have noticed the dragging of my feet has gotten worse as I find it harder to lift my disobedient legs. The falls have shaken me and caused that crisis of confidence. I would be a lot safer and possibly more comfortable in a wheelchair.

Emma and I have discussed this option with some of my medical team. It was during one of these chats when Emma made a really good point. She said: “I think Del needs to stay on his feet for as much as he can because eventually we know he will not have a choice whether to use a wheelchair or not.”

Emma encourages me to go for at least one walk with her a week, normally around the little village where we live. I don’t really enjoy it because of the concentration needed and the fear of falling. But I do realise Emma’s doing it for my own good.

When I stumble inside the house we both just laugh. It’s the only way to deal with it.
I know life in a wheelchair awaits me but I’m doing all I bloody well can to delay that day as long as possible.

I don’t want people to read this and feel sorry for me I’m just telling it as it is. The reality of MND is a very, very bad one. Everything is a big effort at the moment but I’m hanging on in there. Giving into this disease is not an option."

Del

Facebook Group

Hi,

Just a very quick note to let people know there is also a Facebook group - Del's Story. Click here to see it and please feel free to become a member.

Thanks

Del